what families say they want

What Families Say They Want

Before the meeting:

  • Give me a chance to share my story.
  • Help me to find my informal supports so that they can come to the meeting.
  • Educate yourself about my child’s illnesses or my situation, don’t just say you don’t know
  • Listen to my needs and my family’s needs.
  • No surprises-make sure I know before hand what we will be talking about at my meeting.
  • Don’t have the meeting unless I can come if it is about me.
  • Work with me to set up a time that I can be present at the meeting and be sensitive to my needs.
  • Recognize my feelings as a parent i.e. Angry, scared and tired of the mess.
  • Help me understand how the meeting works and what are my options.
  • Listen to what I am saying and explore why I am saying it.

At the meeting:

  • Allow me to introduce myself to the team.
  • Talk to me, not about me.
  • Monitor your tone of voice.
  • Call me by my name not “mom”, “dad” or “the youth”.
  • Make sure I have someone at the table I feel will support me.
  • Use words I can understand.
  • Use humor to make me feel safe.
  • Give me a chance to share my story.
  • Help me to meet my immediate needs first like housing, transportation, childcare, food, lights.
  • Remind me of my family’s strengths and build on them.
  • Ask me how my situation looks in my child and families life…How it impacts us.
  • Provide services where needed not just mandated services. Don’t waste my time on services that will not help my family.
  • Know what the family has to do in all of the agency plans so we can come up with one plan.
  • Listen to my needs and my family’s needs.
  • Use visual prompts so I can follow better.
  • Tell the truth.
  • No surprises-make sure I know before hand what we will be talking about at my meeting.
  • Let me explain why I behave the way I do.
  • Let us speak more.
  • Be open to questions and our opinions.
  • Make the meeting more active and fun.
  • Everyone come like they said they would.
  • Speak to me and my child like we are a part of the solution not like we are the problem.
  • Ask for information; don’t assume you know the answers.
  • Provide access to resources and services.
  • Respect me, and that I am doing what I know to do.

After the Meeting:

  • Respect my confidentiality-don’t talk about me to others.
  • Allow me the opportunity to call meetings when I feel I need to.
  • All team members need to be held accountable, not just the parents.
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